Conference organised by the Association helping individuals suffering from ALS (Amyotrophic Lateral Sclerosis) and other rare diseases and the “Neuron” Clinic was held on 28 September 2017. The aim of the Conference was promoting and improving patients’ rights. Besides the family members of these patients, representatives of Croatian Insurance, local community, as well as the Disability Ombudsman were present.
The Child and Youth Protection Centre of the City of Zagreb was represented by Sanja Jusufbegović, psychologist, who delivered a lecture on psycho-social help for children whose family members suffer from chronic diseases. The lecture was followed by a lively discussion.